Menkes Australia

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Home Menkes Australia News Website Launch

Website Launch

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Menkes Australia has launched it new website at www.menkesaustralia.org.au.

Founders of Menkes Australia, Jeremy and Tamara Murdoch hope that this website can act as a meeting point for Menkes families, a rallying point for those seeking greater access to services for Menkes boys and a dynamic share-point for information on Menkes research and treatments.

Currently www.menkesaustralia.org.au provides information on Menkes disease and its symptoms, copper supplementation and other treatments, newborn screening and stories from two boys in Australia diagnosed with Menkes.

Over time existing sections will be expanded as well as new sections added to cover the latest news and information regarding Menkes disease.

Readers are invited to contact Menkes Australia with their comments on the website as well as any content ideas they might have.

 

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Menkes Australia was established in 2010 to:

- promote awareness of Menkes disease, its symptoms and systems for its early detection;

- advocate for access to treatment and support services, including copper histidine treatment, for all children with Menkes disease; and

- provide support, information and advice to families affected by Menkes disease.

 

Last Updated on Monday, 31 January 2011 02:23